Dystonia Advocacy Network
OVERVIEW
DYSTONIA-ADVOCACY.ORG RANKINGS
Date Range
Date Range
Date Range
DYSTONIA-ADVOCACY.ORG HISTORY
LENGTH OF LIFE
LINKS TO WEB SITE
Friday, April 11, 2014. Kimberly Kuman, Executive Director of the NSDA, Diane Zaia, Stephanie Zaia, and Janet Hieshetter with Senator Durbin in his office in the Capitol. DMRF volunteers joined with the Dystonia Advocacy Network. Friday, January 17, 2014. Celebrating a Success for Research. The appropriations bill passed by Congress this week included dystonia on the list of eligible conditions for the DOD Peer Review Medical Research Pr.
For Email Marketing you can trust. This support group is created by patients for patients in the belief that together we can make a difference in the quality of our lives. It can affect one or more parts of the body. Our Dyscoveries support group was started in 2006 by Denise Gibson and Mary Jane Kellogg.
When a Child is Diagnosed - Resources for Families. How Will We Find a Cure? Newsletters and Press Releases. For 40 years, we have fought for those impacted by dystonia and their families. Working toward better treatments and a cure. Funding research, providing advocacy and support, raising awareness.
Our Group is affiliated with the DMRF. Click their logo on the left to go to their site. Our group is also affiliated with the. NSDA Click their logo on the right to go to their website. Dystonia Support and Advocacy Group of San Diego County. Visit us on Facebook at www. For the latest news and information please click here. To go to our announcements page. SAT, MARCH 31, 2018.
NSTA has helped thousands of people in their search for relief from the pain and disability caused by Spasmodic Torticollis. About National Spasmodic Torticollis Association. We Bring People and Specialists Together. The NSTA annual symposium provides a friendly atmosphere where you can learn more about ST.
WHAT DOES DYSTONIA-ADVOCACY.ORG LOOK LIKE?
CONTACTS
Dystonia Advocacy Coalition
Justin Aquines
18430 Brookhurst Street, Suite
Fountain Valley, CA, 92708
US
DYSTONIA-ADVOCACY.ORG HOST
NAME SERVERS
WEBSITE IMAGE
SERVER OS
I observed that this domain is utilizing the Apache server.PAGE TITLE
Dystonia Advocacy NetworkDESCRIPTION
The Dystonia Advocacy Network DAN is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community.CONTENT
This domain dystonia-advocacy.org has the following on the homepage, "Dystonia Advocacy Network - Dystonia Advocacy Network." We analyzed that the webpage also said " The Dystonia Advocacy Network DAN is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community." It also stated " The DAN welcomes and represents individuals with all forms of dystonia, and is led by the following dystonia organizations. Benign Essential Blepharospasm Research Foundation BEBRF." The header had Dystonia Advocacy Network as the highest ranking search term.VIEW OTHER WEB SITES
Welcome to the Dystonia Bulletin Boards. This web site includes four separate moderated bulletin boards discussing various forms of Dystonia. Anyone can read posts on any or all of the bulletin boards without registering, but if you wish to participate in the discussion, you must register separately for each bulletin board. Click on Register at the top of the board and follow the instructions to register. You must log in each time you return to visit a board. Musicians with Dystonia Bulletin Board.
Recall, cats by their very character are extremely clean creatures and need an excruciatingly clear package at all times.
The European Network for the Study of Dystonia Syndromes. Register now for D-DAYs 2018! 3 Facts About Dystonia. Take a Survey for Change! You can jump too! April 12, 2018. Dystonia Europe 25th Anniversary Conference and D-DAYs 2018. EPF, European Patients Forum, General Assembly 2018.
When a Child is Diagnosed - Resources for Families. How Will We Find a Cure? Newsletters and Press Releases. For 40 years, we have fought for those impacted by dystonia and their families. Working toward better treatments and a cure. Funding research, providing advocacy and support, raising awareness.
Partners in Progress- BSDPF and MJFF. Living With Dystonia and Parkinsons Disease. The Bachmann-Strauss Dystonia and Parkinson Foundation has launched a collaborative research alliance with The .